Today I saw this story of a man named Ed, who was diagnosed with ALS eleven years ago. As the disease progressed, he had to step down from his position as a pastor, and suddenly felt as if he had no purpose in life.
“I never thought that my speaking and writing and living would come to an end. Once I realized it’s getting close to the end, then you begin to realize how fragile life is. And you only do the things that are important. I think humans have this capacity to think they’ll live forever. You ain’t livin’ forever. So what can I do with the limited time I have to make a difference?“
I believe you’ll be inspired if you take a few minutes to watch this short video:
Tears immediately came to my eyes when Ed said, “I knew ultimately it [ALS] would take my voice, so I told God, ‘if you take my voice, it’s okay with me.'” My dad can no longer speak at all, and it has been harder on him than I could’ve even imagined; the inability to talk goes far beyond inconvenience.
Despite the terrible blow he’s received, Ed gives us another reminder to fully live this life. Just like John Evans did. I pray that my dad — and anyone suffering any sort of debilitating disease — will find this kind of peace and purpose. And I pray that those of us who are healthy never take our health and our abilities for granted, and that we will fully live this life, for as long as we have, whether that be days or decades.
Wife, mom, grandma. Introvert who finds joy in good books, sunshine, and authentic conversation. Fitness enthusiast and personal trainer. Often seen with a steaming mug of tea in hand.